Margaret is a member of the MODEM dementia research project team. As a Research Involvement Manager, PSSRU, LSE her responsibilities within MODEM are to ensure the involvement of people with dementia (users), family members, carers and the wider public throughout the project. She chairs and coordinates the Reference Group of Users and Carers and associated professionals (RGUC).
Margaret has been involved with the School of Social Care since the school first set up its first user, carer, and practitioner group. She currently sits on the advisory board. She is also a research advisor for the PSSRU University of Kent.
Margaret is a carer of her husband who has advanced dementia; her mother also suffered from the disease for many years before her death at age 102 in 2013.
Margaret’s career background was in the NHS as an RGN, later moving into general management. She has an MA in Health Law and post-graduate diploma in risk management. For 10 years she was executive director of a patient safety organisation based at the Royal Society of Medicine, she is a life fellow and a former vice-president of the Society.
For over 25 years Margaret has been involved with the community and voluntary sector, initially as a chair/board member of various organisations before moving into patient/user/carer representative roles at all levels including research. Over the last ten years she has increasingly promoted the interests of people with dementia and their carers and has been involved with the implementation of the National Dementia Strategy and more recently with planning for the implementation of the Care Act 2014. She facilitates an ‘Experts by Experience’ carers group for carers of people with dementia; is a volunteer for the Alzheimer’s Society and an Ambassador for Carers UK. She is a carer affiliate of the National Dementia Alliance and as ‘Dementia Champion’ is supporting the Government’s ‘Dementia Friends’ initiative.