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Work Package 12


People with dementia, family members and the public will be involved throughout the project.

Patient and public involvement

We are involving people with dementia, family members and the public throughout the project and in all of our other Work Packages.


Margaret Dangoor set up and manages our Reference Group of Users and Carers (RGUC) of about fourteen people. The Group meets at key points in the project and contributes to key decisions about next steps or about the interpretation of findings. The RGUC is represented on the project's Advisory Group.


We have established routes to facilitating two-way communication between people who use services, families, the public and the research team.

Margaret Dangoor

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